What the guidelines say

The guidelines about MS and rehabilitation from the US, UK and Europe have been reviewed. They supported what people with MS have said is important to them. The guidelines agreed that:
- Appointment times need to be flexible
- Rehab’ services need to be flexible to allow for the effects of fatigue
- Number of visits should be extended when needed
- Easy re-entry to rehab programs when needed
- Distance for people to travel should be as short as realistically possible
- Staff need a good understanding of MS
- To feel heard, understood, respected and cared for
- Clear communication - good explanations and information about treatment
- Follow up from staff – staying connected to feel supported and less isolated
- Being connected with other services in the community
- Practical information to help find the entrance, contact the staff, change appointments, park and organise transport


The guidelines did not directly address the following points, however health professionals agree that these are important to consider when setting up a service for people with MS:
- Pool needs to be at the right temperature
- Social groups, separate from exercise
- Assistance with transport should be available and timely/affordable
- Being in a group for people with MS
- A service to maintain the benefits gained through rehab (eg exercise group)

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