At our second reference group meeting (held 6.5.09) we discussed the barriers that people with MS experience. From these discussions we developed a draft set of recommendations about MS rehabilitation. During our investigation the information we have gathered seems to suggest several themes. Below are examples of the draft recommendations using the themes as headings.
For a full set of the recommendations, please contact us.
Pathways to Rehabilitation:
- When someone experiences an abrupt or gradual worsening in function, they should be able to access rehabilitation
- Access to rehabilitation should be available as the need arises, through a GP referral
- Re-entry to rehabilitation should be simple and outlined at discharge
Nature of services:
- Rehabilitation programs need to be as flexible as possible, and clients should have a choice in appointments
- Achieving agreed goals should determine the length of the treatment, not a fixed number of appointments
Continuity of Care:
- People should be referred to exercise programs after rehabilitation to maintain the benefits gained at rehabilitation
- People with MS should be able to negotiate a form of follow up that suits their needs
Health Professionals:
- There should be a range of health professionals available to people with MS
- There should be a single contact for the person with MS. This key person will be able to monitor any changes in function, as well as co-ordinate services
- Staff should have a good understanding of MS. The MS Society is willing to provide education to service providers
Access & Equity:
- Assistance with transport should be provided
- Rehabilitation equipment should meet the needs of people with MS at all stages of their disease, eg equipment appropriate for wheelchair users
Whilst the social aspect of rehab is very important, social groups separate to rehabilitation are not within the scope of the project.
